Tag Archives: st. louis

they never call, they never write. . .

. . . and they don’t text, email, post on my facebook page, invite me to their linkedIn network, tweet at me, instagramatic me, or send a carrier pigeon.  despite all the advances in communications, twentysomething sons just don’t communicate with their moms.  at least, this is what i’ve been advised.

i have a preflight ritual: as soon as i bolt away from the t.s.a. stormtroopers (uh, agents) i head for the bar, order a beer and text both my sons that the plane is about to take off and i love them. one of them almost always texts back “love you too” the other, meh, not so much.

 

some people say that if you’ve done your job well, then you WON’T hear from them.  that they’re independent.  i’m not so sure.

in any event, i was in st. louis to visit with facebook friend #327 daniel reyna.  he invited me to his home on a sunday afternoon for a dinner he would be making.  ordinarily, i wouldn’t meet a facebook friend for the first time in their home.  but for daniel there were two important exceptional circumstances:  he was inviting me to a family dinner and he has a limited comfort zone in which he operates without anxiety attacks.  also, i had a chaperone.

the reyna family is second generation mexican:  mrs. reyna, daniel’s mom, has nine siblings and her husband has a large family as well.  the reynas have five children including daniel and his twin brother david.  every sunday the reynas get together for an afternoon dinner.  while cousins are welcome, the five siblings and their significant others and children are the core of the meal.  the siblings take turns hosting and each host is allowed to invite an extra guest.  i was honored to be daniel’s guest.  and i was intrigued as to what he would make for us.  i was ushered into a kitchen and met the family.  the reynas are a boisterous group, five different conversations going on at once, and so many times was i asked if i wanted something to drink and ended up with three beers, a glass of wine and a soda in front of me.

i had been eating st. louis’ favorite specialty–fried ravioli–for two days. this dish is not exactly atkins diet material but this and a double i.p.a. is what i’ll be asking for when i’m on death row and the warden asks “what’s that last meal going to be?”

 

a small light meal of an antipasto platter, followed up by pulled pork, roast chicken, barbecue ribs, mashed potatoes, spanish rice, cole slaw, bread, baked beans, and daniel’s twin david had made chocolate pie and apple pie.  whoops, i forgot the louisiana bundt cake and ice cream sandwiches.

in addition to the reynas getting together for sunday meals, they also host a family olympics in the summer with egg tosses, races, and a pie eating contest.  they have a christmas talent show for each other.  they go to mexico every year–although daniel doesn’t go with because of his anxiety.  and they invent their own games, one of which–spoons–they tried to teach me.

i told mrs. reyna that she was so lucky to have her children with her and she said “the best present a mom can give her children is a family.”  she is absolutely right.

daniel was a bit shy about having his picture put in a blog post.  i never post pictures that people don’t want me to.  so i keep the picture in my cellphone.  it was late when i had to say goodbye and i didn’t really say goodbye.  i said au revoir, until we see each other again.  even if it’s on facebook.

later that day, i was on facebook and noticed a status update of one of my sons on my newsfeed.  with all the tools of communication, i think it just makes us MORE aware of wanting what the reynas have every sunday afternoon.


anticipation anxiety and the positive guest blog from david janis

in the end, my facebook friend david janis was not able to see me.  i felt a sense of failure, but i also felt like i understood him completely:  i have had anticipation anxiety suck much of the pleasure out of experiences and i’ve often cancelled when i can’t fathom how i could get from point a to point b in an experience.  nonetheless, david–who is an inspiration to many agoraphobics through the magic of the internet–shared this with me:

 

A Positive Side to Agoraphobia

by David Janis

 

We are writers, painters, musicians, crafters, gardeners and teachers. We possess imaginations that extend well beyond that of the “normal” person. We have broad emotional feelings that reach far deeper than your neighbors. We have learned how to live with ourselves, and accept who we are despite our limitations. When we love it is unconditional and when we befriend it will be for life. We speak the truth for there is no point in lying anymore. Our fears run extremely deep but no one is better equipped to handle them. Fear is a daily occurrence for us and if you believe that practice makes perfect, we have become experts in dealing with this demon. Yes, we are prisoners in our homes but that is only a physical limitation. Mentally we are very sharp, witty and extremely intelligent. This becomes so obvious in the words that we write, pictures we paint, songs we write and gardens we grow. We may not run a mile everyday but or minds are strong and powerful.

In the grand scheme of things, is it important that we are afraid of grocery stores or that we eat? Every agoraphobic I know is afraid to shop for food and yet not one of us ever misses a meal. That is called, identifying the problem and fixing it, and I could easily site twenty examples of this ingenuity if called upon to do so.

We have experienced some of the worst situations that life can throw at one person. Public and private ridicule, expulsion from family, accusations of lying and laziness, taking a free ride and probably the worst, our loved ones and friends have forsaken us. Who else do you know would still be standing as we are, not many, I assure you! All one needs to do is read the daily posts on our forum to see the strength of the people this plague has swallowed. We are articulate, insightful, compassionate, and opinionated. We are firm in our resolve to either beat this affliction or live with it peacefully. We are strong!

So I say to you today, embrace the life you have been given and steer around the bumps and potholes. If you cannot leave your house today, write something, build something or grow something. It is not a curse to be housebound, it is a hurdle, a hurdle that you may choose to jump over, or not. Either way, you are just as important to this earth as the president, the pope and Oprah.

 

What validates you? Is it your bank account or your car? Could it be the house you live in or the company you keep? Maybe it’s because you’re pretty or handsome! What makes you a contributing member of the human race? I can’t answer this one, only you know if your existence is with reason. I can tell you this much, we all have a purpose and we are all incredible people. So go and write a poem, paint an abstract, compose a ballad, start a scrapbook, plant a garden and share your knowledge with whoever will listen, just remember, agoraphobia is only a small part of who you are. All of us that know you, know this to be true, the question is, do you?


just like laguardia on a friday afternoon before a holiday–but without planes!

new york is like a love affair:  getting out is so much harder than getting in–and leaving new york at three o’clock on a friday afternoon, with an e-ticket for a flight at laguardia, you should be prepared for an experience that will not compare favorably with the ex-boyfriend who slashed your tires and dumped a box of your thong panties, that sex toy, and the edible body lotion from victoria’s secret on your mother’s with the words, “i think these are for her.”

but i got out of new york after my visit with facebook friends azusa watanabe from tokyo and carolyn quinn and michele persiak from new york even with a cab driver who got lost, a terminal change, long lines, surly t.s.a. agents who claim they want to touch my junk because i’m “random”, gate changes, delays, cancellations, etc.

i had paid an extra thirty dollars for a “premium” seat 7a. unfortunately, united sold that same seat to someone else. the airline implemented its new “customer empowerment” policy and i lost. i was seated in a middle seat between two oversized bins (i mean men). note to united: can i have my thirty dollars back?

several times over the last year, facebook friend david janis and i have tried to set up meeting with each other.  while i was in new york, we talked on the phone and i resolved that i would really do it!  i made reservations at a hotel and plotted the course.  a few days before my arrival, david messaged me that he was having anticipatory anxiety attacks which was particularly difficult because of some other health problems he battles.  i decided that since the hotel was prepaid, i would go anyway.

david is an agoraphobic who embraces himself and his way of life.  he doesn’t shy from it.  and he helps others who may want to change and others who may not want to–as well as those who think they have no options.   he has a lot of interesting wisdom.  i wanted to hear it!  i told him how long i would be in st. louis and if the anticipatory anxiety fell away i would be happy to see him.

yesterday, i went to the jefferson memorial park and i would have ordiniarily confined myself to going to the westward expansion museum.  but then i thought why do i place a limit on myself or on what i believe is possible for me?

brave before you have your ticket to the arch tram is one thing.  brave after you have put your money down . . . well, in my case, courage evaporated.  and i think part of the mood change, the anticipatory anxiety if you will, is the same as in airports.  the park rangers are now equiped with a conveyor belt, metal detectors, harsh voices.  i saw one poor woman moved to tears because she had to go through the metal detector three times.  finally, she lifted her shirt, as if to say “look, i don’t have anything!”  and this is what we do just to visit a national park.

i needed an attitude change but i couldn’t get enough privacy to create it.  after a long line that slithered down into the basement of the museum, we were loaded as a group into a room about the size of a motel six bath not included.  we should have been appreciating the exhibit items devoted to the arch’s architect eero saarinen.  instead, we were crowded together so tightly contemplative thought was not possible.  we were half an hour late.  we were then herded further into the sub-basement of the museum into another area where we were shown a three and  a half minute safety and history video.

i admit it, i freaked in the eero saarinen tram car.  seats five but only if the five are freakishly small or they are quite friendly in a kentucky cousin sort of way.  getting off the tram and entering into the arch’s viewing area, i totally lost it.  i stood in the center of the eight feet by twenty feet room, with its low slung windows overlooking the city.  i waited for my legs to stop shaking.

the arch shifts a little, there are noises from the bumping tram cars, children running up and down the narrow space made me want to scream “stop it!  you’re going to make the damn arch collapse!”

i waited.  the park officials–can you really call teenagers officials?–looked bored.  a group of teens turned their backs to the windows and took pictures of each other with their cell phones and then texted.  lots of texting.  i decided that yes i was scared.  but hardly anybody was aware of it.  except for that poor couple who had driven up with me on the tram.  they were from indianapolis and i think they were glad to get out of the tram and even more relieved that i was going back down without waiting for them.

we take our victories whenever and however we can find them!  and now i hope that i meet david, but if not, i still have other facebook friends to visit in the gateway to the west!

of course, my facebook friend william clark goes with me for every adventure! he is right there in front of the blue trunk! the real william clark explored the western half of the united states from 1803 to 1806 in what is commonly called the lewis and clark expedition. you can read all about it in William Clark and the Shaping of the West by Landon Y. Jones!